Andorra's TRANA EM Spotlights 'Silent' Multiple Sclerosis on World MS Day, Pushes Disability Law Amendments
Association urges newly diagnosed to seek support and proposes housing, accessibility, and caregiver protections based on members' experiences ahead of parliamentary review.
Key Points
- TRANA EM in Andorra highlights 'silent' MS on World MS Day, urging newly diagnosed to seek support.
- Proposes amendments to disability law: adapted housing, accessibility, caregiver rights based on members' experiences.
- Event attended by Social Affairs Minister; features video on resilience from music therapy.
- MS affects central nervous system, impacts ~4% of Andorra population, higher in women due to stigma.
TRANA EM, Andorra's association for multiple sclerosis, used World Multiple Sclerosis Day on Wednesday to spotlight the disease's "silent" nature and push for stronger protections in the upcoming law on rights for people with disabilities.
The event at the association's headquarters attracted solid attendance, which members praised for boosting visibility. Many with the condition avoid public disclosure, though president Emma Ridgway urged those newly diagnosed to accept it as a "lifelong companion" and seek TRANA's support. She described multiple sclerosis as the "disease of a thousand faces," affecting the central nervous system by weakening the myelin sheath around the brain and spinal cord, with symptoms varying widely.
Ridgway detailed TRANA's planned amendments to the draft law, due for parliamentary review this month. Drawing from members' lived experiences, the proposals emphasise affordable and adapted housing, better accessibility, recognition of caregivers' rights, and addressing needs unique to each disability type. "We contribute the real vision of living with such a condition," she said, adding that the legislation must end exclusions and enable full societal integration on equal terms.
Social Affairs Minister Trini Marín joined the short, emotional gathering. Attendees watched *Superació*, a video from users' music therapy workshops highlighting personal resilience. TRANA, with over 30 years of service and 180 to 200 members, continues initiatives like remote neurocognition sessions through its EM Line programme.
The condition impacts about 4% of the population, with higher prevalence among women, though underreporting persists due to stigma.
Related Articles
Other articles from Catalan-language sources about the same story: